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Feeding Disorders in Children with Cerebral Palsy: A Resource for Parents

Feeding Disorders are common among children with Cerebral Palsy (CP) - it has been found that 90% of children with CP have feeding difficulties (Reilly, 1996).   Often, these children do not have full control of their lips, tongue, and jaw.  Posture may also be an issue.  You may see that food falls out of your child's mouth while they are eating, or that they drool easily. 
See the link below for additional information.
 

 
 
 
In serious cases, a feeding tube may be necessary for a child to take in proper nutrition. Feeding tubes are not permanent - the procedure is reversible.  With proper care and training, a child may learn to eat on their own.  Even if this is not possible for a child, most parents and caregivers are satisfied with the tube feeding procedure and feel that it has a positive impact on the lives of their child and family (Smith, 1999).
See the link below for additional information.
 

 
 
 
In some cases, an intraoral appliance, such as a retainer, allows for improvement in feeding skills due to jaw stabilization (Haberfellner, 2001).  In other cases, a child with CP may be able to imitate proper eating gestures (Gisel, 2000).  These findings give hope for the possibility of independent feeing skills.
 

As a parent, it may be difficult to see your child having difficulty feeding,  gaining proper nutrition, or losing the pleasure of eating.  Here are a few tips for you to use when dealing with feeding issues with your child:
- consult with you doctor or a certified Speech Language Pathologist (SLP) to determine a plan for feeding
- eat with your child; make it a family event - do not exclude your child from the family environment
- use your hand to support the jaw during chewing
- be sure your child is properly positioned (sitting upright if possible)
- help your child to enjoy the eating experience - have picnics, sing songs, and include him or her in family dining
 
 

On this site you will find links to helpful information about CP and feeding disorders, as well as books on both topics.  References are provided at the bottom of the page.

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Links to Organizations
Associated with Cerebral Palsy

United Cerebral Palsy

March of Dimes

More Information about Cerebral Palsy

Mayo Clinic

Children's Disibilities

Kid's Health

More Information about
Children's Feeding Disorders

Lucile Packard Children's Hospital

Books Related to Cerebral Palsy

The Cerebral Palsy Handbook

My Perfect Son Has Cerebral Palsy

Children With Cerebral Palsy

Howie Helps Himself

Books Related to Feeding Disorders

The Official Patient's Sourcebook on Dysphagia

References:

 

Gisel E, Alphonce M. (2000).  Assessment of Ingestive and Oral Praxis Skills: Children with Cerebral

Palsy vs. Controls.  Dysphagia, 15:236-244.  

 

Haberfellner H. (2001).  Feeding Skills and Growth After One Year of Intraoral Appliance Therapy in Moderately Dysphagic Children with Cerebral Palsy.  Dysphagia, 16:83-96. 

 

Smith S, Camfield C, Camfield P. (1999).  Living with Cerebral Palsy and Tube Feeding: A Population-Based Follow-Up Study.  The Journal of Pediatrics, 135:307-310.